Research Trials Make Treatments Affordable for Special Needs Kids

Last updated on September 2nd, 2019 at 07:45 pm

When you have a special needs child, or a child who is ill or any child with a medical need you want to do anything to get them what might help them. Many times treatments are very costly and insurance doesn’t cover all of it, or any of it. One way to give a treatment a try is by getting involved in a research trial.

Many universities and hospitals run these tests, where a new medication or treatment is used and progress carefully monitored.  Sometimes there are groups that get a substitute treatment or medication to compare against the group that got the real stuff. If you are uncomfortable subjecting your child to a new medication (and I don’t blame you there) you may not want to look into these tests, but think about how much progress has been made thanks to people who were willing to take a risk.

Sometimes the trials are for new treatments or techniques, and there are very little risks. I have been hoping to get my child involved in riding therapy, aka hippotherapy, for years, but insurance doesn’t pay for it and neither does our local regional center. They say there is no quantitative proof that it works, even though every involved parent I speak to raves about it. A physical therapist I know who is not easily impressed told me that she saw it work miracles. Plus, the kids have fun doing it, so how could it be bad? A parent whose child does it told me about a research study in the hopes of providing some proof. There were very specific qualifications, which my daughter meets, so with any luck she will get to be a test subject. Fingers crossed!

To find a research trial in your area check your local Craig’s List under ETC or call or write your local university or hospital.

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Editor’s Note:  You can now also try searching for trials by checking the following:  

  • Center Watch – where you can search clinical trials by medical condition and location
  • Clinicaltrials.gov – sponsored by the US National Library of Medicine – where you can search by condition or disease, other terms like the drug name and the country

About the Author

Rosie Reeves is a writer and mother of three; including one with special needs. She works side-by-side with her daughter’s therapists, teachers and doctors. Rosie has also served as the Los Angeles Special Needs Kids Examiner. She can be reached at rosie327@aol.com.Rosie is a member of the PedSafe Expert team

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